Im still here also. Been one BUSY BUSY summer and hasn't stopped yet. My back/knee doctor started me back on P/T again for my back and knees again. Well I went to see him for my knees and told him about my back and he said they cant do surgery (because of all my other health issues) and prescribed more P/T. I do have a lot of tone problems also.

I know my lowerback is probably getting worse because now Im getting the burning shooting pain down my leg especially when Im sitting. The neuropathy has gotten worse also.

Now we also think Im having seizures and the eeg I had came back abnormal. So now Im on seizure meds. BOY did I NEED you all to ask questions about that and the meds.. I still probably do.. We still arent sure what kind Im having.

So on top of all the OTHER appts I already had, I have new appts and therapies on top of those. This month I have MAYBE 2 days (weekdays) where I dont have SOMETHING scheduled.


Adam had surgery to remove two jaw cysts. He just had the drain tube removed a few weeks ago. THEN we found out Noah has a HUGE jaw cyst in his lower jaw. Adam's were upper jaws and smaller than Noahs is. Noah had 7 biopsies done 2 weeks ago for skin cancer and 1 was positive for skin cancer and the one right below it might also be. They didnt get enough tissue to sample but it looked the same so Im saying it probably was. Im not breathing totally easy on the other 5 because I had one that said "NEGATIVE" but ended up being one of my WORST positive skin cancers.. So I will still watch his. They STILL havent treated Adam's skin cancers even tho he has had TWO POSITIVE biopsies ( one was 1 1/2 YEARS AGO).. Stanford wants to see the boys and is interested in treating them. I might just start taking them there if the doctors they see now WONT start doing something. You dont mess with cancer, I dont care how slow growing it is.. AND you DONT mess with THIS mother lion and her cubs!!!

Adam Noah and I leave tomorrow for Sacramento for Ronald McDonald house because Noah has his yearly MRI for his brain cyst and Chiari on Tues and sees the oral surgeon on Wed for his HUGE jaw cyst then we come home on Thurs. Then Friday I have more P/T.

I also changed our primary doctors and the boys have an awesome new pediatrican!! I really like her. She is on top of things and gets things done. I told her about Adams behavior problems, anger and other issues and she right away requested an evaulation from a psychiatrist. She asked why one hasnt been done. Well one was done when he was 6 to be tested for Aspergers (he is 11 now). I said, no one will listen to me.

Anyway.. Sorry this is so long.
HUGS and glad to see you all again.
Gina Marie