InaGirl, I am so sorry to hear about all that you are going through. I am glad that you have been able to get a prescription for Mestinon, even if the doctors are confused about the diagnosis somehow. I've been lucky about that, too, as initially I wasn't able to get the prescription, even when we already knew it helped me. They really wanted a positive diagnosis.

I've just spent a week in the hospital with something that was something like a myasthenic crisis. I was in the ICU for three days, then on the regular ward of the hospital for four days. I narrowly escaped being intubated. I had five days of IVIG treatment, and made some improvement thankfully, although I hope I'll make more improvement. I see my local neurologist on Tuesday. I hope we can come up with a different treatment plan, so that hopefully this won't happen again. That was scary!

I send out good wishes to everyone here for all that you are facing.

Take care,
Erin