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Old 09-20-2015, 12:26 AM
LIT LOVE LIT LOVE is offline
Magnate
 
Join Date: Mar 2010
Posts: 2,304
15 yr Member
LIT LOVE LIT LOVE is offline
Magnate
 
Join Date: Mar 2010
Posts: 2,304
15 yr Member
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Yes, I do still respond to blocks, but IMO they are more well suited to treating a specific area like one limbs or even one side of the face. When you have multiple areas, I'd say that boat has pretty much sailed. I'd have the same concerns with the spinal cord stimulator.

I reacted well to HBOT on spread to my leg months after being in a car accident. If you can afford it, I think it's a great option. If you can try outpatient Ketamine infusions, that is a much much better option than a SCS IMO, and again is more well suited when multiple areas are involved. I am pretty much pain free in warm ocean water, and love swimming. If I could run off to become a mermaids, you all would never here from me again. I think it's a good idea to load up on as many treatments, procedures, lifestyle choices that can help as possible. Try out the RSD diet--it's essentially a version of eating Paleolithic to reduce inflammation. If you get relief from massages, get one as often as possible. Try an infrared sauna--I noticed it helped with swelling. Try Tai Chi or low impact Yoga. Don't your doc introduce more than 1 new med a month. Learn deep breathing exercises and or meditation. If a new area of spread crops up treat it Aggressively! Lidocaine patches are great for this. Baths with Epsom salts or using Epsom salt cream will help reduce swelling. Increase vitamin C. If you respond to steroid packs, have one on hand for emergencies. (I just had a fall a few weeks ago and tweaked my lower back. I had a trigger point injection belatedly but it's helping. Ditto to the steroid pack. I was using Epsom salt lotion and Lidocaine patches, which often are enough, but not this time. I'll schedule a few massages in the coming weeks and might hit the sauna as well. Had I known to try all these my first year after developing the disorder, I'm confident I could have had a good shot at remission...)

I will say that you have to be careful not to be doing things that encourage spread--this is in general and not meant towards any poster. I still have issues with my elbow, shoulder, neck and back from bracing my "bad" hand/arm the first few years after developing CRPS. The meds I'm on mask some of the pain, but the underlying issues are still there.
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