Quote:
Originally Posted by Juliek72
I am a 43 yr old female. I had surgery for my cuboid bone that was not healing from a stress fracture and it got worst. Surgery 6-24-2015. I am a little over 2 months post op. No pins or screws just smoothed out bone and removed bone fragments broken off from bone. I have been going to ortho for post op every 2-3 weeks. Right after surgery for a while I suffered with a burning sensation if anything touched my foot. That is not as bad. I still can not walk long distances without crutches. Ortho sent me to pain dr on Friday. He diagnosed me CRPS. All he did was look and touch my foot (ouch) and my symptoms are. Numbness especially along outside of right foot, pins and needles when touched or when standing or walking. Swell throughout day and bad at night. Very stiff and sensitive to touch ( not severe like pain when sheets touch). Foot feels cold at times but no discoloration. He is doing a nerve block next week and put me on morphine and Lyrica. Does this all sound like a correct diagnosis of CRPS. To me from what I have read it doesn't. All information is welcomed!!!
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Hi Julie,
Like you, my CRPS developed within the context of foot surgery as well. Your case sounds very very familiar to me. If I may, I'd like to encourage you to find a good Physical Therapist. At the early stages, which you are now in with CRPS, if you can hit this disease hard early on, you have a better chance of kicking it into remission. Since there is no cure for CRPS, that is he best any of us can hope for.
Now, here is the kicker, chances are, your Physical Therapist has never heard of CRPS. None of the many that I have worked with over the years knew anything about it prior to my walking into their office. So, they are going to need to be educated. My PT found what she needed to treat me, when I was first diagnosed, so I know the information that they need is out there. So after you find a good Pt, tell her / him to look for information among their sources for knowledge on how to treat CRPS. If they look, they will find it. I know mine did.
Here are some things that might be of help to you.
1. An efficient Pain Management Doctor and a good Physical Therapist
2. Proper Medication to help at least a little bit with the pain.
3. Water therapy
4. Mirror Therapy
4. Flash Cards for retraining the brain with different hand positions for you to identify. (Sounds easy, but is extremely difficult for CRPS patients)
4. Music Therapy
5. Chiropractors are beneficial to some (though it didn't help me)
6. Spinal Cord Stimulator/ and external stimulators
7. Spinal Nerve Blocks
8. And a Good healthy diet (This is essential IMO, since CRPS symptoms are tamed a bit by a leafy vegetable type of diet... Again In My Opinion
And one last thing. IMO-Everyone who has CRPS responds differently to different types of treatments. What works for one, doesn't work for everyone. And please remember, Your best chance of beating CRPS is to hit it early and hit it hard. There is no cure, but remission is possible, and your best chance for it is early on. I wish you well.