Thank you both for the replies. The GI specialist I saw specialises in gastroparesis. He's a top professor and I do trust him. It just threw me as the first GI I saw was a generic gastroenterologist who was convinced it was just "one of those unfortunate things" that I have gastroparesis and an autoimmune disease.

I'm not overly keen to put myself through more tests, especially if it won't change the outcome. I did get a letter from rheum this week and she has referred me for nerve tests to a neurophysiologist. I shall see what the outcome from those tests are.

Thank you again!