Hello and welcome to the NeuroTalk Support Groups.

I'm sorry to read about your diagnosis. I can only suggest posting on the

Movement Disorders Forum

or

General Health & Rare Disorders Forum

You could also try using specific keywords in the forum search feature.
e.g. Ataxia or cerebellar ataxia

I just tried quickly using ARSACS and Charlevoix-Saguenay but I didn't find anything.

Forum Search Feature


If you have Neuropathy as part of the symptoms, you could also check on the 2 forums I've posted below as you may find some tips to deal with your symptoms on a daily basis.

Peripheral Neuropathy Forum
It also has a subform for
PN Tips, Resources, Supplements & Other Treatments

All the best to you.