Welcome. I have been fighting neuropathy and everything that prevents me from being well, so my husband says, for almost 7 years.

I was diagnosed with Guillian Barre Syndrome. I had relapses and was diagnosed with a rare form of the chronic type of GBS. It is called MADSAM. It means multifocal, (everywhere), acquired, (not genetic, but in my case unknown), sensory and motor.

It's a demyelinating polyneuropathy. I have axonal damage. It's progressive unless the medicine works fully, which it doesn't, or I can figure out the cause, I haven't conclusively but still trying.

I understand the struggles. I also know the triumphs. I have found lots of ways to keep the myelin as healthy as possible and my spirit too.