Hi all,

Does anyone know whether full body sfn with symptoms in the face, tongue, nose as well as legs, trunk and spine point more towards a ganglionopathy? I had read somewhere that non length dependant may be suggestive of this. My skin biops results stated that nerve damage was not suggestive of that but I'm still not sure.

Can anyone advise in whether certain blood tests can be taken to determine whether ivig may help you? I'm still not entirely sure on the mechanism of action for ivig and as I'm already on autoimmune disease overload I'd not want to worsen things. My neuro does not offer any advice or suggestions on that question. I'd have to push for the tests.

Any advice would be great. I'm spending alot of energy pushing for access to ivig, although futile right now. Pain hs floored me this week.

Can rapid bowel transit be a sign if autonomic neuropathy? I have heart flutters, dizziness, and lots of tummy spasms often. Gastro test showed rapid bowel transit.