If your family is willing to contribute financially, I would explain that there are things you absolutely can try but there is zero guarantee they'll have any effect.

I'm probably going to go ahead and buy this device within the next few months: http://www.fisherwallace.com/pages/advanced-pain-relief

Will it help? I'm not sure. I'm beginning to have an increase in cognitive issues, and it seems worth trying.

If I had an extra 5k to spare, I'd try another round of HBOT. If I could arrange to do a few outpatient Ketamine infusions during the same period, all the better. If I could stay close to a warm pool and get massages and have some infrared saunas, that would surely help.

I tend to respond, at least short term to a lot of different procedures and meds, and not everyone does.

It absolutely does freak people that there is an illness they've never heard of that is so disabling. The fact that there is so much questionable info out there doesn't help. Even the doctors that are supposed to be experts don't seem to share the same ideas about treatment protocols.

Are there treatments you'd like to try but simply can't afford or have you explored every treatment you think is important? If there are, could you accept financial help and not stress if you have no response? Would there be strings attached, if you accepted financial help? All decisions should be yours and yours alone.

Being seriously ill exposes the strength and deficits of a person's relationships...