To stay on topic - for your first question: my pain went almost completely away for about five weeks after my first infusion (I get them about every two months and have had three to date). I was able to discontinue the 2400 mg of gabapentin per day I was taking. The only other med I take specifically for CRPS is Effexor for neurogenic pain, which I did keep taking. Between my second and third infusion I started back on a low dose of gabapentin because of migraines. I did have a some CRPS pain by the time for the next infusion but it was tolerable.

As for your second question: I probably saw the same videos you did on line. I believe that Dr. decides how much to give you based on your ability to answer questions and if you start to have nystagmus (when your eyes go quickly back and forth).

After my first infusion they did ask me questions such as was I still seeing double from the nystagmus, like, how many fingers am I holding up, or how many eyes do I have?

This clinic does require that you bring close family members for the entire infusion and to stay with you for about three days after because of the high dose given. In my case, it helped to keep me grounded and it helped to have someone who understood me. There was no listening to soft music, special blankets or video for me during the infusion. I couldn't have noticed anything like that. It was like going in for general anesthesia.

All that said, it hasn't been scary. I mainly just needed a close family member there.

Good luck.

Denise