Thread: Ganglionopathy
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Old 09-27-2015, 04:32 PM
JoannaP79 JoannaP79 is offline
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Join Date: Feb 2015
Location: South England
Posts: 246
8 yr Member
JoannaP79 JoannaP79 is offline
Member
 
Join Date: Feb 2015
Location: South England
Posts: 246
8 yr Member
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Quote:
Originally Posted by en bloc View Post
IVIg is Intravenous Immunoglobulin. It is antibodies from blood donors. It takes about 2000 donors to make ONE dose of IVIG. That is why the cost is so high. My treatments run over $30,000 each (once a month).

The reason it is helpful for autoimmune based neuropathies is that IVIG is believed to help modulate the immune system...that is attacking its own body. The exact mechanism of action is unknown, but this is how they believe it helps the patient.

Hopes this helps.
Thanks en bloc. My neuropathy came on about 1 year ago. It was mild until December when the pain started. Does that mean too long for any hope. I worry that I haven't been caught early enough and now may have to wait few months more if I am able to access it
My symptoms are severe and debilitating so feel I am way beyond mild stage sadly.
Appreciate that it all depends and my question may not be easy to answer.
Thankyou en bloc for the really useful info :-)
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