Quote:
Originally Posted by mrsD
This sounds related to your livedo issues.
I'd get tested for cryoglobulins, which are proteins made in the bone marrow. When exposed to low temps, they thicken and stop the circulation. You may be beginning to have this elevated.
http://www.hopkinsvasculitis.org/typ...oglobulinemia/ |
If it's related to the livedo issues, it seems crazy that 3 of us with in a few weeks of each other started getting it and that it could be caused by an autoimmune antibody.
Unless we have some kind of viral or bacterial cause that could cause a vasculitis.
They assumed a year ago in the hospital that it was some sort of autoimmune vasculitis, but could find no test results to prove it. I was eventually sent to the neuromuscular dr. who found the SFN and autonomic stuff. I am probably due for some retakes of my blood work in the next few months.