Thread: Ganglionopathy
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Old 09-28-2015, 10:08 AM
JoannaP79 JoannaP79 is offline
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Join Date: Feb 2015
Location: South England
Posts: 246
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JoannaP79 JoannaP79 is offline
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Join Date: Feb 2015
Location: South England
Posts: 246
8 yr Member
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Quote:
Originally Posted by en bloc View Post
Have you considered a short course of steroids...to see if your neuropathy and other symptoms are largely inflammatory based? If not, then it would be a wise choice...not a long course, just a taper pack. If your SFN is more inflammatory based, then you might feel much better (immediately). It's worth a try, just to determine (and learn) the amount of inflammation you are dealing with. Labs may/may not help tell you about your level of inflammation, but they are not very accurate.
My blood shows minimal inflammation which is frustrating. My eye problem is iritis, inflammation of eye due to autoimmune attack. My joints are inflammatory reactions too. I tried corticosteroid shot and one week if prednisone which didn't help the neuropathy.
I do feel that my neuropathy is much worse since stopping the enbrel, not that I had improvements on that.

En bloc, do you know from your latest rheum visit whether a biologic may be used in conjunction with IVIG?
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