Hi Carrie. I also have sensory motor. I have a variant of CIDP called MADSAM. Sometimes the protein isn't elevated when they test the spinal fluid. I only had a minor elevation. It can be asymmetric. I would get the spinal done and a whole battery of tests to rule out many causes as soon as possible. In the meantime, you may want to avoid certain drugs that are especially toxic to genetic neuropathies. There's a good chance of a diagnosis with a cause that may be treated to stop or even reverse your neuropathy. Sooner is better than later, because if it's treatable, so that no unnecessary damage happens. University hospitals seem to be better for this type of neuropathy because it's not so common.

This is the cidp article, there are tabs to the left and top which include tests and differentials
http://emedicine.medscape.com/articl...erview#showall

This is a listing of Centers of Excellence for best places to go because it is a rare disorder

http://www.gbs-cidp.org/get-support/...of-excellence/

This is the CMT website listing medicines to avoid that may be toxic to genetic neuropathies.

http://www.cmtausa.org/resource-cent...c-medications/

Let me know if you have any questions