Thank you for your response and links!

The 2nd neuro I saw was at KU which is on the list of centers for excellence. I'm not taking any of the drugs on the toxic list.
I'm worried that the neuro isn't being aggressive especially if it is treatable.

Is CIDP genetic as well? Are there treatments for genetic neuropathy?

Have you tried physical therapy? I was curious if this has helped anyone. I have basically been told there is no treatment, just medication.
Thanks!