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Originally Posted by carrieLharris
Thank you for your response and links!
The 2nd neuro I saw was at KU which is on the list of centers for excellence. I'm not taking any of the drugs on the toxic list.
I'm worried that the neuro isn't being aggressive especially if it is treatable.
Is CIDP genetic as well? Are there treatments for genetic neuropathy?
Have you tried physical therapy? I was curious if this has helped anyone. I have basically been told there is no treatment, just medication.
Thanks!
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If you had been diabetic for an extended period before finding out, I believe that diabetes can cause Neuropathy. There is a long list of things that can be done to help, but no miracle cures. Your b-12 number needs to be above 400 because b-12 deficiency symptoms can mirror PN pretty closely. I tried PT but found daily exercise just as effective and a lot cheaper. It seemed my muscle recovery was more dependent on nerve healing than physical therapy. I also found value in using Mortons Epsom Salt Lotion on my feet at nightime for burning and tender skin. And as mentioned above, keep sugar under control so no more damage is done. Good Luck, Ken in Texas.