Write up your case facts and what is happening to you, send email & maybe even paper copies to gov officials, one of them may be of help , or at least they will know what injured people are dealing with.
State & federal - Congress persons, reps, governor, even president & top cabinet members.

I know in the past a few members with med/treatment issues did write their reps and did get some help.. so it can't hurt to try...
The more stories they see from real people the more it will help them to understand how people are affected..

You could even call if that works better for you.