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Old 09-29-2015, 03:09 PM
February February is offline
Junior Member
 
Join Date: Jul 2014
Posts: 93
10 yr Member
February February is offline
Junior Member
 
Join Date: Jul 2014
Posts: 93
10 yr Member
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This is the doctor listed who runs the program. He may be especially helpful if the protein isn't elevated, and 20% aren't.

http://www.kumc.edu/school-of-medici...achkie-md.html

CIDP is acquired, although genetics may play a role. Like in taking Metaformin. There are those who believe their cidp was caused by it. But there are many other suspect causes as well. The causes, presentations and degrees are varied

I needed physical therapy. I had to go inpatient for a few months and out patient for another year all together. I like it because they can test your range of motion and gage where your at. Sometimes it's hard to know if your getting better or worse because it can be mixed. If benchmarks are set than progress can be measured. I do Maya Fiennes yoga, modified and swimming to work with all the muscle groups.

Unless you are stable and getting better, I would personally rule out cidp and other known causes. Mayo was able to rule out genetics for me based on emgs that were only seen with acquired. They can appear the same for many. Sometimes it takes a chance with ivig, plasmapheresis, prednisone, and others to see if there's a response. And only then can they tell there's an immune mediated disorder or not.

What are your b12 levels?
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