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Old 09-29-2015, 03:51 PM
Katharinefelicity Katharinefelicity is offline
Newly Joined
 
Join Date: Sep 2015
Posts: 1
8 yr Member
Katharinefelicity Katharinefelicity is offline
Newly Joined
 
Join Date: Sep 2015
Posts: 1
8 yr Member
Default New and frustrated!

I have the anchr ganglionic neuronal antibody that causes autonomic disfunction. I have pots along with severe nerve pain and other neuropathies. I have tried every medication and iv steroid the mayo clinic has suggested and have had bad reactions to all of them. Ivig is the only thing left to try but my insurance denied it since the beginning two years ago. I have gotten to the point where I have no other options and I need this treatment. Does anyone have any recomendations? I was curious about going international and getting treatment elsewhere if it was cheaper. Does anyone have any experience with this? I haven't had much luck finding out about it on the Internet.
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"Thanks for this!" says:
Darlene (09-30-2015), Lara (09-30-2015)