Thread: Ganglionopathy
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Old 09-29-2015, 04:06 PM
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Join Date: Feb 2011
Location: Shenandoah Mountains, VA
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en bloc en bloc is offline
Senior Member
en bloc's Avatar
 
Join Date: Feb 2011
Location: Shenandoah Mountains, VA
Posts: 1,250
10 yr Member
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Quote:
Originally Posted by February View Post
I think I need a do over.
I just wanted to bring awareness that sometimes TNF-A medications can cause an immune mediated response that may be acute or very slowly over a long period of time. Sometimes the response stops when the med is discontinued, sometimes it keeps going. If it is recognized it can be treated with ivig and the damage is stopped and reversed. I know this because it is not uncommon in the cidp community.

This article describes, 3rd paragraph from bottom

http://emedicine.medscape.com/articl...65-clinical#b5

I brought this up for awareness and I don't know your history. If there's a sliver of a chance this could help I had to post it.

Take care
I think your point was noted the first time. However she said she had the nerve damage 'before' taking the Embrel and stopped it due to worry about the nerve damage (that already existed).

Thanks for your informative link.

If she gets the IVIG then it would cover this connection anyway.
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"Thanks for this!" says:
February (09-29-2015)