Thread: Ganglionopathy
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Old 09-29-2015, 04:50 PM
JoannaP79 JoannaP79 is offline
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Join Date: Feb 2015
Location: South England
Posts: 246
8 yr Member
JoannaP79 JoannaP79 is offline
Member
 
Join Date: Feb 2015
Location: South England
Posts: 246
8 yr Member
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Quote:
Originally Posted by en bloc View Post
I think your point was noted the first time. However she said she had the nerve damage 'before' taking the Embrel and stopped it due to worry about the nerve damage (that already existed).

Thanks for your informative link.

If she gets the IVIG then it would cover this connection anyway.
Thanks all.

February, appreciate the info. Sadly ii developed sfn before any treatment and the neuro and rheum both felt enbrel would be worth a try as excessive tnfa I have due to ankylosing spondylitis may be behind sfn. Only 3 reported cases of enbrel enduced sfn were found when neuro and I did research. It's an absolute nightmare. Sit here every day asking myself whether I should re inject the enbrel stacked up in my fridge.
Enbrel is much more commonly associated with demylinating neuropathies is my understanding. It's still a huge shot in the dark taking it in my case. It does however have really food results in treating my original disease ankylosing spondylitis.
Can I please have some new non defective genes if anyone knows where I can find some :-)
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