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Old 09-30-2015, 08:36 AM
wfseniors wfseniors is offline
New Member
 
Join Date: Aug 2012
Location: London, UK
Posts: 3
10 yr Member
wfseniors wfseniors is offline
New Member
 
Join Date: Aug 2012
Location: London, UK
Posts: 3
10 yr Member
Red face Flower

Quote:
Originally Posted by bjs1228 View Post
I hope I am posting in the right area as I don't really have a diagnosis yet. I'm a 44 yr old female in good health or so I thought. I have tingling and numbness in mostly a glove stocking distribution. My symptoms began last February. One day, my back felt like it was going to sleep. I had previously experienced some back pain after a long day of cleaning so I thought it could possibly be related to that. Within a few days, a had a really cool feeling in my calf muscle. This feeling came and went. As time went on, I started having tingling in my toes, feet and legs about up to my knee. I also began to have weird feelings in my hands. I went to the doctor in March thinking it could be a pinched nerve or something related to back pain from over doing it cleaning. The doctor did an x-ray (negative) and referred me for physical therapy. Eventually I had an MRI on my thoracic and lumbar spine. The MRI showed some degenerative changes at L4-L5, a slight bulge in that area and a small cyst at L5, I believe. My back pain seemed to come and go and over the summer I was even walking and running without pain. Then, I bent over one day to get a shoe and had some really bad pain. My numbness and tingling continued to progress and basically never subsided. In July, I had a steroid epidural injection. The PA I was seeing was still convinced that my numbness and tingling were related. My physical therapist was convinced that they were not related as it didn't explain the numbness in my hands and didn't radiate down my leg, but began from my toes up. He thought I should have my B-12 checked. In August, I had routine blood-work. It all came back normal, but they didn't check my B-12. I requested a nerve conduction test, which came back normal. I met with the PA last week to go over the result & he said the test proved that my numbness and tingling is not related to my back issues. I just had a B-12 test today and the result was normal according to the nurse. I asked for the number and she said it was 374, which is actually low according to some information I have read here and elsewhere. They have tried to get me in with two neurologist and have been unable to find someone to see me yet. The sensations I have are definitely not normal and I must find answers! I do not have any vision, motor o weakness issues. It is strictly these sensations of tingling and numbness in my body. I have thought about MS, small fiber neuropathy, and still a B-12 deficiency. Sorry if this is a jumbled mess. It's hard to condense about 8 months of trying to figure out what is wrong with me into a paragraph that makes sense. Any thoughts for me? Thanks for any help!

Hi Bjs1228, sorry to hear that you are suffering so much I do hope someone wil bw able to help you. I too am a newby here, just introduced myself last night, I suffer from tingling ( more like a cell phone vibrating) and numbness but only in the toes and balls of my feet. It happens more at night around 10ish. It has given me many sleepless nights. I have End Stage Kidney Failure and am on hemodialysis 4 hours three times a week. I am not diabetic as I hear that it's mostly people with diabetes who get this but I do have Sarcoidosis an autoimmune disease which the doctors think MAY HAVE! scarred & damaged my kidneys. My Vitamin B12 level was 774 in Aug last year. I too was looking to gets tips & advice from other member on dealing with this, please.
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bjs1228 (10-01-2015), St George 2013 (09-30-2015)