MSA sucks. I am lucky I suppose in that I actually work for Disability Employment Service provider..hey if they can't keep me working as long as possible...who can?
I'm just afraid that I am degenerating faster than friends and family realise. Perhaps they think they are cheering me up by pretending things are not as bad as they are.
I'm not looking forward to the end, not for me, but I don't want my daughter to see me when I can no longer look after myself. She turned 8 just the other day.
I wonder how many more of her birthdays I will see?