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Old 10-02-2015, 12:14 PM
heb1212 heb1212 is offline
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Join Date: Apr 2012
Location: Upstate New York
Posts: 107
10 yr Member
heb1212 heb1212 is offline
Member
 
Join Date: Apr 2012
Location: Upstate New York
Posts: 107
10 yr Member
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Quote:
Originally Posted by KateKline View Post
i will be starting prednisone today. It is a taper back pack to see if I can get some symptoms under control. I asked for it and my pcp said " sure! You've been so sick for a year I think it's worth a try!" I don't see my THIRD neuro doc till the 14th. My first 2 told me I had anxiety! Finally I got one to do punch biopsy and results were positive for SFN. They offered me nothing for it. My left arm is weak and shakes. My left leg won't go when I walk so my gait is slow and unsteady. It shakes too. I have a feeling inside me like someone is shaking my insides and terrible pressure in my upper abs at times. My feet are quite numb most of the time yet very cold. It's been extremely debilitating. It started after a car accident a little over a year ago. I lost 50 pounds.....I'm freezing all the time. I have IC (interstitial cystitis) which contributed to the weight loss. I cannot eat processed foods or preservatives. I'm a total insomniac. Haven't been able to fall asleep in a year. My life has come to a complet halt. I have no strength left. Sooooo, wish me luck. I think I've got nothing to lose. Thanks for listening
Kate... You've been through so much. Yes, best of luck and a touch from God that you have some success. When I initially started with my neuro problems I was freezing all the time too. Also unable to ever fall asleep, lost 60 pounds in four months and have horrible pelvic pain on top of everything. Did you develop the IC along with your neuropathy or before it? I'm wondering why you can't eat processed foods and how it impacts you. Maybe that's part of why/what I'm going through and don't know it. Take care
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"Thanks for this!" says:
KateKline (10-02-2015), St George 2013 (10-03-2015)