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Old 10-02-2015, 09:56 PM
BadMonk BadMonk is offline
Newly Joined
 
Join Date: Oct 2015
Posts: 2
8 yr Member
BadMonk BadMonk is offline
Newly Joined
 
Join Date: Oct 2015
Posts: 2
8 yr Member
Default New to Group

Hi all! I'm new to NeuroTalk but glad I finally found it.

For the last 8 years or so, my feet have been a pain. It started during physical therapy for a knee injury/surgery. The pain originally concentrated in one area on the ball of my right foot. There was burning in both feet too but it wasn't extreme. With time, the burning intensified and worked it's way up my shins.

Between the pain in the ball of my foot and the burning pain in both feet, my ability to stand or walk became limited. I couldn't wear normal shoes. It was slippers or crocs or whatever...as long as it was big, loose and soft.

I've seen several podiatrists, neurologists, general practitioners and a pain manager. Nobody knows what I have. Tests - blood work, EMG, MRIs, etc. - look normal to them.

It's been very debilitating. When I had office job so it was easy to put my floppy shoes under the desk and take pain med. That stopped after a lay off and developing very bad reactive airways disease. When I finally got some breathing back, I decided to be semi-retired and drive a school bus.

The problem was that, as the foot pain grew, so did the prescribed pain meds...and you can't drive a school bus on pain meds. So finding a job at 59 with limiting medical issues is difficult, at best.

The pain in the ball of my foot has been reduced with a series of injections. But, I still can't do too much - like stand for more than fifteen minutes.

I take Tramadol and Lyrica. Cymbalta was prescribed but that made me sleep constantly so I took myself off it. I have a prescription pain cream. Does it help? I have no idea but I think not since the pain is still there. I've even taken Vicodin (for kidney stones) and even that doesn't touch the pain.

I used to be very active. Not any more. The physical therapy that I was doing when it started was from a martial arts injury. Since then however, I've put on twenty five pounds and work in my garage for a few hours every day to get some movement/activity otherwise I'd be sitting in a chair with my feet up.

Other than tinkering, I no longer work because I can barely walk, but, even while seated, my feet burn and hurt ALL the time, which makes concentrating on anything almost impossible.

I've had normal EMG/NCS test (but research that I've done on SFN says it's normal to have a normal EMG/NCS). My B-12 and loads of other blood tests are always within ranges. I don't drink.

I live 60 miles north of Philadelphia, PA. None of the many docs I've seen ever mentioned SFN. I just recently learned about it and am pursuing it (skin biopsy) with my primary. On Wednesday, she referred me to a neurologist (again) to ask about the biopsy. Today, I'm told the earliest appointment with neuro is January 2016. (I could probably be seen at the Mayo Clinic before then, geez!).

There's got to be a better way to get dx'd and medical help. It's like a never ending battle.
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"Thanks for this!" says:
St George 2013 (10-03-2015)