Hello,

I am glad to read your thread. Will you precisely tell me all the medications and dosages you are taking for the seizures? I have been diagnosed with Psychosomatic Non-Epileptic Seizures (aka - Functional Neurological Disorder, Conversion Disorder). The specialists claim it's "psychological/emotional", but yet can't give me one example to back up their claim! That's because there is no past history of such, so I'm left with no answers, and no where to turn. I've had every scan and lab possible, repeatedly, to no avail. I've spent 10's of $1000. out of my own pocket for years. In fact, I've given up on the medical community, even though I continue to have severe symptoms, daily.

Does anyone out there have "extreme" rapid blood pressure spikes (200's/190's - ruled our pheochromocytoma) and rapid blood pressure falls (50's/30's) within seconds, as well as seizure-like limb jerking, uncoordinated feet/high stepping, slurred speech, lack of motor control to stand or walk, and brain fog? I need help and the medical community does NOT have answers... I don't know anyone with my symptoms and have no support. I am very tired of all of this...

I would sincerely appreciate any information. Thank you.