Don't write us off just now, it is sometimes nice to have an unconnected person to chat too, about fears, about pain, about life in general.
There are quite a few people who have un diagnosed issues, they don't have a section to belong to either, or like me have an array and nip between boards.
I hope you find some answers, I have a brain injury and it was a very scary time. I found it helpful to chat to others with brain injury even though we all acquired them by different means, stroke, infections, trauma, hypoxia, hydrocephalus etc.
Sometimes it's good to have a place just to vent.
You never know, there maybe someone else join who could use your experience!