Thread: frustrated
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Old 10-07-2015, 11:43 AM
mj mj is offline
Junior Member
 
Join Date: Aug 2015
Posts: 21
8 yr Member
mj mj is offline
Junior Member
 
Join Date: Aug 2015
Posts: 21
8 yr Member
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So, I have completed my 4 week "trial". I have noticed temporary relief of my rigidity with the suppertime tablet. On 2 days I added a 3rd tablet after more than usual activity (which is causing me much difficulty), and noted relief then as well. I spoke with my GP yesterday and he wants me to now take 30 mg 4 times/day for 2 weeks and then take 60 mg 4 times a day for 2 weeks and call him with an update...he has readily admitted that he has "limited experience" with MG, which may or may not be my diagnosis. Obviously, I am concerned with this. He also suggested that should this regime offer positive effect, that I will likely be dx with "seronegative MG". My understanding is that Mestinon is a help for symptom control, but is not treatment ...is this correct?
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