Junior Member
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Join Date: Jan 2014
Posts: 49
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Junior Member
Join Date: Jan 2014
Posts: 49
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Thanks Icelander!
I really appreciate the response. My post was long and rambling so Im not surprised that people haven't replied!!))
I went back and read and see that you are in Scotland AND have SFN and thyroiditis and RA. This is naive but if you control those, doesn't that control the neuropathy, or no?
I can't believe its been two years of this. I declined the biopsy when the emg was normal. Now I have hard time believing I could even pass an EMG! The atrophying muscle has me very freaked.
This is all made worse by a few things. First, I am a female of "that age." So there is more than a fair share of "oh your almost in menopause" going on. Second, I am 46 but I have 3 kids, 2 of whom are very small (4 and 6). This has been devastating for me b/c Ive become a snappy, yelling mom who is so absorbed in "finding out" whats wrong with me. I am also worried b/c I want to be here to see them grow - I want to be around and see them live and without a "cause," I feel like that sword always over my head. Also my husband, while amazing in so many respects, is of the tough and nonworrying sort - he doesn't beleive anything I say until the doctor says it. He is against researching and message boards, and honestly does not want to talk about this as much as I would like. You know what, on some level I see his point. I think too much knowledge has almost killed me. Finally, this may be harder for those of us who were once super active and super healthy. I came through open heart surgery 8 years ago (for a faulty mitral valve) without a tear or a worry. I wasn't on the message boards etc. I faced it very matter of fact b/c i KNEW what was going on. This has me mourning my future and I don't even know what's wrong yet. You are a few months ahead of me!
Direct me to the date of the post with your relaxing/healing recommendations.
L
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