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Old 10-13-2015, 08:12 AM
Ragtop262 Ragtop262 is offline
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Join Date: Mar 2015
Location: Midwest
Posts: 381
10 yr Member
Ragtop262 Ragtop262 is offline
Member
 
Join Date: Mar 2015
Location: Midwest
Posts: 381
10 yr Member
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Sorry your having so many issues these past couple days. I had the whole twitching/cramping/buzzing thing in the first few months that I had this, then those symptoms settled down and pain became the primary issue. (Kind of frustrating when your phone buzzes in your pocket, but when you go to answer it you realize its not actually ringing and that buzz in your leg is still there.)

When I started gabapentin, it seemed to really reduce the muscular symptoms (twitching/cramping/buzzing). But, I see you are on lyrica (a similar drug) - and it's apparently not helping.

So, unfortunately I don't have a solution for you; the only thing I can offer is support. You are experiencing symptoms that are similar to many others here with SFN - although it seems that many doctors don't recognize these as related to SFN.

Like you, I have to drag my butt to work every day despite the symptoms. I've been fortunate that things have stabilized for me over the past few months. Not sure if its because of the supplements I'm taking, or just the course the disease is taking for me.

Don't lose hope, and make sure your doing the best you can to keep the nerves healthy with nutrition, supplements, etc.
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"Thanks for this!" says:
Blairzo (10-13-2015)