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Originally Posted by Pyr2
As for Lyme, Madison, I feel for you. While not an elite athlete, I was/am! a pretty good one - and I have been been cutting back the last few months out of fear. Should I? Probably not. And that has led to deconditioning which has led to more fear that Im weak and tired and something "must" be wrong.'
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Do not slow down out of fear!!!! Keep going and let pain be your guide.
Quote:
Originally Posted by Pyr2
I am thinking though that its the EBV. My titers NEVER go down. I had a horrible case as a teen. Every time Im tested they are there. I think that is the source of my persistent infection. I am going to an infectious disease dr at U Penn next week but not thinking she's going to make anything of it b/c while I show high titers by ELISA, I don't by PCR and you have to have the DNA in your blood for them to consider it an issue (kind of like you and Parvo , heb). I will ask her about the Lyme as well but I know ID doctors are not big on Lyme either.
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ID docs seem to be a waste of time and money for most of us patients that have been swept into the fray. It is not uncommon for individuals who have issues with EBV to have autoimmune thyroid issues. Get a full panel that includes thyroid antibodies.
Keep us all informed as to how your testing goes!