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Old 06-27-2007, 09:48 PM
Stocky Stocky is offline
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Join Date: Jun 2007
Posts: 2
15 yr Member
Stocky Stocky is offline
New Member
 
Join Date: Jun 2007
Posts: 2
15 yr Member
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Thanks for the feedback.
Her Neurologist from CHOP (Childrens Hospital of Philadelphia) specializes in Epilepsy. Actually he is now heading up a department at UCSF. We are probably going to continue under his care, even though we are in NJ.
She only gets the fevers when sick. They don't just appear out of nowhere. We are familiar with the ketogenic diet but have never seriously looked into it.
She has never been seen by aCardiologist, Immunologist and Hematologist .That may be something to look into.
Her most recent 20 min EEG was almost 99% clean. Just a few little blips lasting less than a fraction of a fraction of a second . That's how the doctor described it.
She's come along way since day one and after getting her off Depakote and onto Lamictal she's doing MUCH better.

thank you again for the insight and suggestions , I will look into everything you guys/ladies have suggested.
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