Hi all,

Wanted to post my latest update and see if anyone has any thoughts. I have had my PN since March/April of this year. Developed sort of rapidly and has just stayed with me and pretty much non-length dependent with ebb and flow of symptoms. All testing had come back normal with the exception of a mild copper deficiency and neutropenia (consistently low neutrophils). I have been doing oral supplementation of copper as there is some connection between copper deficiency and neutropenia as well as PN. Needless to say despite the doses, it appears my body has a challenge absorbing copper so my levels remain low. Well I just came back from the immunologist who ran a whole bunch of new autoimmune tests and he showed that I was high on GD1a Antibodies and GQ1b antibodies which are suggestive of an autoimmune process. When I google these markers, it appears they are often tied to Guillan Barre Syndrome. He said these findings could indicate that I would respond well to IVIG treatment/gammaglobulin therapy which serves to neutralize the overactivity of these antibodies. Another doctor(hematologist) believes I should be trying an IV for copper to see if this improves my neutropenia. I am at a crossroads for treatment and no clue which direction to go. Both are time consuming and have their hurdles with insurance (particularly IVIG). Curious what folks think? Have any others had these auto immune markers in their panels. Welcome any and all reactions from the group!