Hi Alaina!

Thanks for sharing your experience with compression stockings.
I have been fine with them, for several years now, until this episode of pain and edema. (I have liked the open-toed style.)

Some compression stockings are made of some materials which just do not go well with profuse sweating. This episode/flare involves extreme sweating. I am constantly changing socks and all clothing.

Thanks again!


Hi Vintagewine!

Yes, chronic pain is quite a challenge.
I do fairly well with coping until it flares to this degree again.

The severe burning, the crushing pain, etc. Well, you know all too well.

You have mentioned allodynia. It's a tough one to deal with, for sure.
I do understand. Exacerbated allodynia is a part of this flare for me, as well.
I think it's difficult to imagine just what you've described until/unless someone has felt it him/herself. I was awake last night, for hours, feeling like my legs/feet were covered in stinging bees, just as you have mentioned.

I appreciate your suggestions for topical meds!

We are considering some topical/topical combinations. (Hurry up already! When things feel as though they are on fire, I know I don't want to wait longer for some major relief.)

My rheumatologist and primary care are consulting with one another and we will choose a topical formulation or two.

I know the literature often states people do not react as strongly to topical meds; yet, I react very strongly to a topical if it's the wrong one. I have had batches of topicals ruined because a doctor had decided, at the last moment, to include a med I cannot tolerate (serious shortness of breath).

We are trying to make sure we are all on the same page, have considered all med allergies/sensitivities and all potential interactions with oral meds, etc.

Thanks, again, so much for your suggestions!