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Magnate
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Join Date: Dec 2014
Location: Yorkshire, England
Posts: 2,098
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Magnate
Join Date: Dec 2014
Location: Yorkshire, England
Posts: 2,098
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Hi there,
I understand pretty much all of your conditions, amongst many other conditions I suffer Neuropathic Facial Pain/TN and bodywide Neurological Hypersensitivity. Even being in the North of England I cannot bear anything covering me at night, even the lightest clothes burn. Intensity overall from all my conditions (excluding Cluster Headaches) is a 9.
The only treatments which make life bearable are 4 weekly infusions of Lidocaine, Oral Ketamine and the side effects of the heavy doses of Topiramate I take for Cluster Headache suppression - not that it is working at present. All together brings my Hypersensitivity down to a 5 for 2-3 weeks depending on external circumstances.
Meditation has also been a powerful weapon in my arsenal until recently where I have been unable to achieve a Meditative State due to further pain caused by a fall. I miss it and am worse off for losing the Practice.
I hope I have given you a couple of ideas you have not tried yet. Wishing you relief from this terrible list of conditions.
Dave.
__________________
You and I are yesterday's answers,
The earth of the past come to flesh,
Eroded by Time's rivers
To the shapes we now possess.
The Sage - Emerson, Lake & Palmer.
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