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Member
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Join Date: Apr 2007
Location: Tampa Bay Region, Florida
Posts: 456
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Member
Join Date: Apr 2007
Location: Tampa Bay Region, Florida
Posts: 456
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In addition to backing Sue up - I have to agree with her in
regards to the medications, I too have been on Dilantin, Mysoline,
Depakote, Phenobarbital, Felbatol, Tegretol, and so much more.
And at one point I was on 5 anti-convulsants (which we call them
AED's - anti-epileptic drugs today), while it worked for a time being
really messed me up. It would only be a matter of time before my
body would develop a tolerance to the medication or I would develop
a side-effect(s) or allergic reaction(s) to it.
I agree - less is better.
Back then it was tough remembering when to take all these meds,
some of them had to be taken like 2 hours after this, but before
you had to take that - enough to make your head spin. And some
of those meds made me seize more, and some did absolutely nothing
but make me sleep all day and all night. I hardly got anything done!
However I do want to stress that one of the most frustrating thing
for an Epileptologist or Neurologist are those Frontal Lobe seizures
where it doesn't record on the EEG's and the patients are seizing,
especially those who have had head traumas, birth defects, or
something. While it may or may not show up on the Scans, it's
still frustrating to them. But it is possible for a person with Epilepsy
to also have pseudo-seizures - having both. And there are also
tell-tale signs of those who have "fake seizures" (noticed I'm not
using the word pseudo-seizures) which are psychological in nature
that they are able to treat via a Psychologist and/or Psychiatrist
or sometimes via a Social Worker.
Neuroscience has my deepest sympathy, because it has to be
the most frustrating Medical Field in part, as I've been studying
and reading up on it; all because I'm not satisfied with the
answers and responses I receive, and now I can see why. But
they are doing all they can with everything they've got and have
come a long ways in progression (and yet still have along ways
to go) in spite of all the technologies they currently have.
__________________
Sharon
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" Vujà Dé - The feeling you've
never been in here before!"
Daily Feedbag of Zonegran, Clonazepam, and Folic Acid
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