I have seen several references to something similar and wanted to post my experience, hopefully to help. It began about 2001 when these electrical storms would start at the base of my skull and would travel up the back of my head before stopping right at the top of my head. It would take about 30 seconds and although it was painful, it was so frequent that I felt it was driving me crazy. I would define a distinct center line down my head and would occur only on one side. Now for about 6 months it was on the left side, then it switched and for a specific time it stayed on the right side. It never would occur on both sides at the same time or within the same period of time.
I simply cannot describe how these tremors or seizures or whatever you might call them will dominate ones life. Neurologist after Neurologist turned me away and claimed that I was simply crazy.
I have severe central sleep apnea stopping breathing over 1100 times per night as well as narcolepsy, but they all claimed that none of this was relevant. And who was I to say? I'm no doctor.

It was completely by accident that I began Hyperbaric Oxygen therapy in 2006 for Lyme disease. I was going three times per week and eventually went for a year. But it was about two months into the treatment that I noticed that the electrical storms were visiting no more. Those storms stayed away until January of 2015, so for about eight years. I have looked and looked but cannot find another hyperbaric center that is willing to take me. I currently have started ear insufflation with ozone trying to somehow get oxygen to my brain. I feel that it was the intense oxygenation that solved those electrical storms for me. In fact I believe that hyperbaric oxygen could benefit many of the illnesses that we experience. I benefited from it greatly, but over time I eventually lost those gains. Although the fibromyalgia did leave and has not yet come back. It actually took the whole year for me to realize that it no longer plagued my day.
It seems like every time I research something, I am always drawn to conclusive evidence that as we age we do not oxygenate our bodies properly. Or rather that we are able to oxygenate our blood adequately, but we tend to lose the ability to oxygenate our cells as we did in our youth.
I do not believe that medicine takes this possibility very seriously, or how it could impact so many disease processes. I am not suggesting that everyone immediately spend their days in hyperbaric chambers as it is very time consuming. But I believe that it begins with the thinking of something being possible, that opens the door to many other avenues of treatment, etc. Things that hadn't been considered until the very need arose. We really do not clearly understand the brain as much as we should and I have found that the information that I was told by neurologist fifteen years ago really was not as valid as they represented.
In fact I believe that chronic illness is a disease process that is created by specialized medicine. By the process of keeping the patient occupied doing busy work hoping they will either miraculously find a cure or that the patient will just go away. But I doubt that even the doctors see themselves as the creator of hope in treatments that the patient clings to.
Oh well, just my nickels worth.
perfectlypeg