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Old 10-22-2015, 08:08 PM
cdwall cdwall is offline
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Join Date: Jan 2014
Location: NC
Posts: 136
10 yr Member
cdwall cdwall is offline
Member
 
Join Date: Jan 2014
Location: NC
Posts: 136
10 yr Member
Default Day nine

Thanks to all for your comments.

LittlePaw: They think the edema is from CRPS. The next time I go to my PCP, I'm going to ask her if I need to be referred back to vascular. It's apparently blood pooling as shown by three phase bone scan. I've been to a trillion specialists. I'm pretty tired of it but this is a major problem and unlike others with CRPS so I think a trip back to vascular is in order.

DeJaVu: You've got me curious which forum I "met" you on I do have my hands full. So many problems. Most major in and of themselves. It seems like a mystery no one can totally solve. I don't want to be special. I just want to be like everyone else

LIT LOVE: I do Epsom salts baths every day. The other I can't manage right now. I'm scratching and clawing my way back and forth each day and it's all I can do. My sister took me most of last week and will drive me some more of the time this go round. She had to last time too. Plus I just couldn't make it some days last time.

BioBased: Medically, I'd be pretty scared to offload 20 plus lbs of what could be inflammatory edema too quickly by any method unsupervised. Plus we're talking about over a third of my body to wrap at this point. They don't quite know what is causing the excessive swelling. I can temporarily reduce it some by various techniques. Mostly gravity. It's caused by my blood vessels not working properly and or inflammatory swelling. Gravity is a major factor. Even if your technique worked it would just some back when I stayed on my feet long enough. It always does.

I'm just too wary of trying your technique right now. I also have POTS and Addison's and have to be careful about too much of a shift in fluid balance and electrolytes. Maybe another time or a smaller area. But thanks for the suggestion.

I haven't felt as bad today as the last eight sessions. I've been coming home and sleeping like a dead person for several hours after. Then I'm still done for the day. Today slept I could do a few things once I got up. Staying closer does not look like it's going to work out right now unfortunately.

Will keep you posted as I can.

Denise
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"Thanks for this!" says:
mama mac (10-22-2015)