Member
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Join Date: Apr 2014
Location: Dordrecht, Netherlands
Posts: 225
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Member
Join Date: Apr 2014
Location: Dordrecht, Netherlands
Posts: 225
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Let me state, that I am not a doctor, and I can only make suggestions from extensive reading, of what other people have experienced.
That said, it does sound as though you MIGHT have one of the CMS variants or some other Myasthenic syndrome. It is certainly possible that you might have MG too.
Obviously if your root problem is partly or wholly not an auto-immune disease (CMS are genetic defects) then taking immuno suppressants could cause all sorts of new problems.
I hope that your new Neuro takes a serious look at all of your history and gets to the bottom of the problem. Fingers crossed.
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