When I asked Dr Shenker at Addenbrookes how many of his patients had gone full body, all 4 limbs torso neck scalp eyes mouth and internal organs he said in this country we change the diagnosis but wouldn't say to what months later I came across 3 sufferers who said when it went full body the diagnosis was changed to fibro, it was even brought up in the Parliamentary debate 9/7/2013.
I do realise Dr Getson's opinions are his own but I have asked our medical team to consider the possibility that he's right and also that Phantom Limb Pain may also be CRPS