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Old 10-23-2015, 05:03 PM
cdwall cdwall is offline
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Join Date: Jan 2014
Location: NC
Posts: 136
10 yr Member
cdwall cdwall is offline
Member
 
Join Date: Jan 2014
Location: NC
Posts: 136
10 yr Member
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Quote:
Originally Posted by -Spike- View Post
Hi Denise,

I use Dr. Weil's Anti-Inflamitory Food Pyramid. This way of eating has really decreased the amount of swelling in the worst areas of my CRPS infected body, since these foods are, as the header states, of an Anti-Inlamitory nature. Some foods, for example: Red Meats, really make me flare up badly. Though I must say, when I am around friends, I might go off the Pyramid on occasion. I refuse to have CRPS completely dominate my life, so I do just flat out chow down on whatever I'd like sometimes. Here is the link:

http://www.drweil.com/drw/u/ART02995...d-Pyramid.html

In my opinion diet plays a very important role in treating MY CRPS. It may be different for others, but eating a good healthy diet REALLY TRULY makes a difference for me. I find that website to be extremely helpful. I hope it serves you as well.

-Spike-
Thank you Spike. I'll check it out. I've tried Dr. Wahls' Diet for MS and The Paleo Mom's AIP diet. Both eventually with tweaks and modifications to better suit me. On Dr. Wahl's diet I couldn't keep myself out of severe ketosis even though I wasn't at that highest level (there are three levels). I'm sorry to say after a year and a half of careful management, I've been horrible with the sweets lately. And one thing I know for sure is that sugar increases my pain and swelling! I think I'm back on the right track now. Or getting there. Perhaps your diet will help me get closer to the best diet for the n=1 that is me. My problem is I lose my appetite on these diets and just stop eating. Now I'm trying to keep it loose enough so that doesn't happen but strict enough to keep me feeling good.

As for your original question, like many of us, I was very physically active my entire life until the CRPS/POTS hit me quite suddenly nearly three years ago. Right now I do what I can which is many days just trying to take care of myself and my dogs (no walking- big yard). I do some restorative yoga when I can. I can't be on my feet for more than a few minutes because of my POTS shooting my heart rate up so high so I'm trying to find the right recumbent exercises to build myself back up. And like so many of us, yourself included, I grieve for my former physical abilities and want them back.
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"Thanks for this!" says:
DejaVu (10-31-2015)