Quote:
Originally Posted by cdwall
Thank you Spike. I'll check it out. I've tried Dr. Wahls' Diet for MS and The Paleo Mom's AIP diet. Both eventually with tweaks and modifications to better suit me. On Dr. Wahl's diet I couldn't keep myself out of severe ketosis even though I wasn't at that highest level (there are three levels). I'm sorry to say after a year and a half of careful management, I've been horrible with the sweets lately. And one thing I know for sure is that sugar increases my pain and swelling! I think I'm back on the right track now. Or getting there. Perhaps your diet will help me get closer to the best diet for the n=1 that is me. My problem is I lose my appetite on these diets and just stop eating. Now I'm trying to keep it loose enough so that doesn't happen but strict enough to keep me feeling good.
As for your original question, like many of us, I was very physically active my entire life until the CRPS/POTS hit me quite suddenly nearly three years ago. Right now I do what I can which is many days just trying to take care of myself and my dogs (no walking- big yard). I do some restorative yoga when I can. I can't be on my feet for more than a few minutes because of my POTS shooting my heart rate up so high so I'm trying to find the right recumbent exercises to build myself back up. And like so many of us, yourself included, I grieve for my former physical abilities and want them back.
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So very well stated. Thanks for this post. Chocolate is such a magnet, since it is so enjoyable for many people. Yet, candy bar types of chocolate just sends my pain levels skyrocketing. Another one is chips, oh my goodness, does that one ever nail me hard pain wise.
EDIT: I'D LIKE TO ADD: One thing I try to make sure of... I refuse to be a slave even to my meal plan. I'm like you.. this catches me.... at times I do really well with eating right.. but there are times that I just plain crash. And I think that is because it is so hard to constantly fight the battles that we must fight. It really is HARD! IMO
Some time, I'd love to hear a doctor speak about how aggressive this disease is as it uses the activities and foods, which people really do generally enjoy, just to bring added pain and struggle to CRPS patients. And then to have that same doctor give us recommendations beyond just physical therapy on what we CAN do--That would make it even more interesting. That would be a very interesting hear, IMO.