Originally Posted by PurpleFoot721

I know that CRPS can effect the eye and I don't know what it actually can do when it does, but this almost sounds a bit more like MS. Have you by chance ever been tested for that? I don't mean to scare you but it may be something to discuss with your doctor. I do know that CRPS and MS can both present similar symptoms so I can only say it as a suggestion.

Originally Posted by stillsmiling

Actually the very first time this happened they thought it was a stroke. Then for a very long time MS was on the table. I have had many MRI's over the years looking for lesions on my brain and or spine. There were never any. MS is possible without lesions but very rare. When I walked into my newest Neurologist/PM Dr appt I told him about the problem with my eyes. Side note he was trained for nine years by world renowned RSD Doctor, Dr. Schwartzman. Anyway he told me before even looking at my chart he could tell CRPS/RSD had spread into my eyes because of the swelling, color, and temperature. Then reading my report seeing optic nerve damage. He said certain things can cause a flare in my eyes, mainly lights, too much visual stimulus, and outside temperature specifically too hot. He suggested that I wear two very dark pairs of sunglasses at the same time. At night two sleeping masks. I don't do well with a dark room with the contrast of a bright computer or TV screen either. I appreciate your comments, and am always very open to opinions, concerns, and information. Thanks. I really love this great group of concerned friends. Big fat hugs.

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