New Member
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Join Date: Oct 2015
Posts: 5
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New Member
Join Date: Oct 2015
Posts: 5
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Hello,
I'm new to the forum. I'm 44 I was diagnosed with NPH at 37. If you have just gotten the diagnosis then please get a MRI with contrast and a flow study. Most NPH is caused by a blocked or narrow aqueduct. My symptoms are pressure that builds up during the day and severe fatigue, my gait has changed and urinary frequency and urgency. I had a sleep study which said hypersomnia. I don't have a shunt and I am not on any medication. However with recent vision changes and finally getting diagnosed with hypersomnia neurosurgeon said its time to do ETV. I have had to find information on my own and most DRs don't know about it. I don't have headache or swelling of optic nerve ( that's for people with high pressure) if you have questions just ask and I'll try to help you. I don't want anyone to go years waiting on treatment like I did.
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