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Member
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Join Date: Oct 2012
Location: canada
Posts: 553
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Member
Join Date: Oct 2012
Location: canada
Posts: 553
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I don't want to discourage you. I want to encourage you by saying that I had it very very badly for a very long time. it is complete hell. I know what you're going through. When our whole sensory system is hurting, it hurts to exist.
There are number of things you can do. Vision assessment and therapy is extremely important. It made a huge difference to me to stay in the dark, wear sunglasses, get blue Blocker lenses in all of my glasses, get prisms.
Finding ways to cut out sound. Ear plugs, noise filters etc.
Vestibular assessment.
All of these systems are all interrelated in the brain.
Little by little. The more little things you address, the better off you will be. And things can improve. It's an entry where you have to be patient. Keep trying to get through each hour. Dig deep. The brain continues to heal forever. Take care. Don't lose hope.
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What happened: Legs pulled forward by a parent's hockey stick while resting at the side of the rink at a family skate....sent me straight back. I hit the back of my head (with helmet) on the ice, bounced a few times, unconscious for a few minutes. September 11, 2011. Off work since then…I work part-time at home when I can. It has been hell but slowly feeling better (when I am alone☺).
Current symptoms: Vision problems (but 20/20 in each eye alone!) – convergence insufficiency – horizontal and vertical (heterophoria), problems with tracking and saccades, peripheral vision problems, eyes see different colour tints; tinnitus 24/7 both ears; hyperacusis (noise filter gone!), labyrinthian (inner ear) concussion, vestibular dysfunction (dizzy, bedspins, need to look down when walking); partial loss of sense of smell; electric shocks through head when doing too much; headaches; emotional lability; memory blanks; difficulty concentrating. I still can’t go into busy, noisy places. Fatigue. Executive functioning was affected – multi-tasking, planning, motivation. Slight aphasia. Shooting pain up neck and limited mobility at neck. Otherwise lucky!
Current treatments: Vestibular therapy, Vision therapy, amantadine (100 mg a day), acupuncture and physiotherapy for neck, slow return to exercise, magnesium, resveratrol, omega 3 fish oils, vitamins D, B and multi. Optimism and perserverance.
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