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Old 10-28-2015, 02:00 PM
kitkat33 kitkat33 is offline
Junior Member
 
Join Date: Oct 2015
Posts: 8
8 yr Member
kitkat33 kitkat33 is offline
Junior Member
 
Join Date: Oct 2015
Posts: 8
8 yr Member
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Glass100. Thanks. I had an MRI with contrast (Beg Oct) that showed the enlarged ventricles but I have not had a flow study. I have an appointment with a specialist with Hydrocephalus on December 17th and I also submitted a package to John's Hopkins Hydrocephalus center in hopes of getting my case reviewed there - (I have been told my case is currently under review). I am just nervous waiting. I have some other potential autoimmune symptoms - rashes, heart rate changes (POTS), etc. that I have had for 10 plus years that have me worried something related to an undiagnosed condition could be causing this but, all my blood test have been normal not showing an autoimmune diseas. I also had a Brain MRI done in 2010 that I was told was normal. So, just curious if hydrocephalus was somehow missed then and that could be the cause of all of my symptoms or if I now seem to have two issues going on, the hydrocephalus and something else. I guess time will tell but I am just very nervous waiting around. Thanks again for your comments
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