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Old 10-28-2015, 11:00 PM
bny806 bny806 is offline
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Join Date: Nov 2011
Posts: 576
10 yr Member
bny806 bny806 is offline
Member
 
Join Date: Nov 2011
Posts: 576
10 yr Member
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Thanks for your reply!! I have had PLENTY of flares the past 5 years while on IVIG.. but have been doing fairly well the past 1.5 years with IVIG every 3 weeks and a loading dose every year (now we are getting close to when I usually do my "re"loading dose - the end of the year).. But, I just left my stressful job - no more crazy hours, so I expected to be better, and in some ways I am.. but my weakness has been worse this past week, i haven't had butter fingers this bad in over 1 year..

I am on Hizentra... I LOVED gammunex.. was on it for 4.5 years IV.. why do you prefer it over the hizentra subq? I LOVE infusing at home, and that it only takes about an hour vs 7-8 hours.

Speaking of flares- i'm always nervous about the flu shot - do you get yours? I hear it's not very effective this year, and I have pretty bad leukopenia (wbc of 3.1 three weeks ago)... don't know if it's worth the risk (has caused exacerbations in the past).. eek!

Thanks!
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