Quote:
Originally Posted by Rain shower
Hello all,
I have had crps since 2003 from hit and run auto accident. I have been able to "manage" the pain and work full time until this most recent work related event in March. I use the term "manage" Very loosely, as more often than not I fell into bed in terrible pain when I finally returned home. My job required travel and managing team of research professionals. I basically lived a lie and kept my worsening disease a secret from coworkers and family. My husband of course knew to the extent that I allowed him to, which was very difficult and I did my crying at night after everyone was safely sleeping.
I feel like my world is shrinking, in that I am either in bed or pacing in my room, as this pain spreads to whole body. I am seeing three MDs, two pain specialists and my primary care with whom I have worked with for many years. I have three stellate blocks scheduled in December, as this is recommended by workers comp and pain docs, to perhaps give me some relief for left arm original site of crps. They are also suggesting spinal cord stimulator, which I respectfully have declined due to all the problems this device has had. So they have suggested the new Stimwave stimulator injected via needle and has external battery, if memory serves. There is not much out there on this relatively new medical device so digging up information has been difficult.
I thank you all for sharing on this site, as you have become a trusted life line for me as my world shrinks and my depression and anxiety increases. I am using every ounce of my being to deal with the pain and other symptoms of this disease.
Take care
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My Goodness. Thank you so much for posting this. I can relate. I think that this is one of the most difficult parts of this disease--A Shrinking World. First it's the pain, then it's the loss of cognitive functions like focusing on tasks, loss of concentration on that which we desire to accomplish, loss of the ability to plan etc, and then the pain spreads again, then it's the loss of memory, then it's weakness... and on and on and on... Our world and what we can now no longer do just keeps on shrinking our interaction with our part in the world around us. And along with that comes the loss of our doing activities with other people too.
My doctor has told me many times, saying, "Try to keep connected with people and keep as active as you can." I agree with that, but, my my.. some days, it is just so flipping hard that all I can muster up energy for that day is to go to the restroom, the fridge, and hide my head under the pillow, because I hurt so badly!!!
I commend you for hanging in there at work. I hung in there as long as I could too, until I was just failing way too much. Way to go! I have a lot of respect for you for still doing it!
Amen to your post! Thank you for posting it. it is so true. CRPS is the Disease of the Shrinking World! Thanks again!