Member
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Join Date: Nov 2011
Posts: 576
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Member
Join Date: Nov 2011
Posts: 576
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Thanks!!! Since I Have the severe small fiber neuropathy and all of that stuff as well, they were always concerned if maybe i had CIDP, though LEMS was aboe it on the list.. so the flu shot really concerns me.. but so does getting sick!
I do 20g weekly as well.. Once I set everything up and all (which takes a while), it takes i think just barely over an hour.. i was doing 50g every 3 weeks.. i feel like it kicked in 2 days later and feel better now.. I was excited that I ate a steak at a friends house tonight and didn't almost choke - last time I was there I could barely eat any as I couldn't chew (jaws) or swallow well.. and that was on IVIG.. so maybe it is working ?!!
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