Quote:
Originally Posted by Mark in Idaho
Windcity,
As much as packersrule was successful getting a good plan at Mayo, his experience is rare. Not many neuro rehab facilities know how to care for concussions. They may be able to offer speech, physical and occupational therapy but the therapists often are more able to help more serious injuries get to a recovery level that is similar to where concussed patients start.
Hopefully, you can find help that works. If you local neuro rehab can help, good for you. Just don't go broke expecting miracles. Take it slow.
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Hi everyone,
Sorry it has been so long to reply to any posts. It has been quite the rollercoaster ride. I am happy to be able to tell you that my son is doing much better.
He has started vestibular therapy again in July. He has seen a psychologist regularly since March, who has had extensive training in concussion and anxiety. This has helped tremendously. We have learned how much of an impact the nervous system has on the recovery; that the body has gone into fight or flight mode and it is not mind over matter.
My son had to take time each day for specific relaxation exercises, folding a few facecloths, then taking a break, going outside for 30sec, having a visit for 5min,etc. Babysteps. He kept a chart to see improvement. After supper it was basically downtime and talking with me about the ups and downs. Time for encouragement to keep plugging away.
Falling asleep still takes a long time, but he has been able to cope with that much better with the help of his psychologist.
We bought him a voice recorder for relaxation exercises. We recorded quite a few different once without background music. Huge help.
He has good days and days that are dark. We are very hopeful that he can go back to university in Januari, starting with one class. Noise and all the movements around him is still a big factor to work on before then. He has also recently started to drive again for 10 min or so.
I am surprised at how long the recovery is taking. When things looked very bleak 6 months in I tried my best to encourage my son and to not tell him how long it might take. I tried to tell him only positive recovery stories so he would keep on pushing forward.
18 months is a long time, but the light at he end of the tunnel keeps getting brighter.